After a long day of testing we have got the answers that we wanted. Makhi scan for Neuroblastoma is "clean" NO EVIDENCE OF DISEASE...HIPP HIPP HOORAY!!!!!!THANK GOD!!!!
This test is always the most nerve racking test that he gets out of all of them.... It takes a few days to get the results but it seems like months. But my husband and I can both take a big sigh of relief knowing that Makhi as no return of the Neuroblastoma...OMS is still our biggest battle and Makhi is starting some new treatments for OMS. Makhi will now start weaning off the ACTH AGAIN .... and he has been put on a new drug called Methotrexate. This is a steriod sparing drug that they use for children with other auto immune disorders and it helps suppress the immune system. We have also discontinued the IVIG for now.. THIS IS A HUGH STEP in Makhi's treatment and I am asking for all of you to pray for him that this works. Makhi has fought this disease for going on 3 years next month...It has been a long battle for him and our entire family. I have been praying for Makhi and begging God to allow Makhi to be successful once and for all w/ his treatment of OMS. I also thank god everyday for all that he has seen Makhi threw.

I have also just learned of a child (Reid Nealson) this week who lost his battle with OMS on Nov 18,2009. After being treated for OMS children become very immune-compromised and a simple infection can be deadly ,the children lack the ability to fight of infections during OMS treatments. My heart is breaking for the Nealson family and I would ask that everyone pray for them as they face the lose of there son who was taken way to early...:(
If you want to read more of Reid you can but going to his carebridge page

www.caringbridge. org/visit/ reidnelson
Take Care