UP ON ACTH

Well once again I am just doing another update. Makhi has been having some OMS break though symptoms (tremors, rage attacks , mild lose of coordination). I have contacted Makhi's OMS doctor and we have decided to increase Makhi's ACTH from .17 to .20 until we go to see Dr Pranztelli on Sep 8,2008. The increase is minimal.03
I can't wait to go to the appointment and get the results back from the LP. I just pray this mild relapse is just because of a minor cold he had a few weeks ago and not because his B-Cell level our elevated.... (Crossing my fingers).

Makhi and I also went and meet his new pediatrician today and I must say I really like him. He was able to tell me Makhi's story before I ever said a word which shows me that he took the time to really go over his medical records. Makhi really seemed to like him also ,he was very playful with him.

As far as his behavior it is improving... Last week with Makhi was a LONG week... His behavior was just off the charts .. being mean to his sisters and other children he was also doing the ear piercing scream and making himself vomit when he would get himself so worked up.. well lets just say I am happy this has passed

You know one thing I must say it my girls really take this in stride... they love him so much but there are so many times OMS is just not fair to them either. It has robbed them of my time and attention alot and yet they really seem to understand. I can't say they have not become upset about it at times but they find it in there heart to atleast try to understand and that is just amazing to me.

Well I really am not excited about the incease of ACTH but it has to be done.. Agressive treatment of OMS is the only way. I'll keep everyone updated