Tuesday, July 22, 2008
Daddy Makhi Cierra & Nataly in a tent Makhi made...
I just wanted to update everyone. Makhi tremors have gotten better since IVIG but they are still there.... just not as bad as they were. I've also notice that he trips over his feet a little more and his coordination is a little off.. so we will just have to play the WAITING GAME FOR NOW and see if this resolves itself. I really do hope we don't have to up him on the ACTH.. I am so looking forward to him coming off of it!!!!! I will keep everyone updated and thanks to everyone who has shown concern about Makhi.
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Your family is so beautiful! I am glad to hear the tremors are easing up-hopefully they will continue to do so. I am praying that he will be able to keep weaning from the ACTH. He has been through so much already and I know these small setbacks are terrifying, but you are doing great with him. Love to you, Makhi and the whole family!
Debbie and Connor
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