This has been a very STRESSFUL week. At the end of last week Makhi started with a cold. By Monday I could see tremors in his hands...By Tuesday they were in his legs.Also his behavior has been really bad. I have seen 3 rage attacks in the last 2 days and I have not seen that in a long time (another OMS symptom) Needless to say this makes me very NERVOUS.....
Makhi has done so well with treatment since he started.. He has had NO relapses since he started treatment in Aug of 2007. So to see his hands and legs start shaking again makes me want to cry..
I contacted Dr Pranztelli office (OMS DOC) yesterday they wanted Makhi to have his IVIG treatment early (he was suppose to have in 7/21) So we spent the hole day at the hosptial today getting it done.
OMS symptoms can reappear when a child has a cold or is sick. Having the IVIG will help him fight the cold and stop his immune system from becoming active. For all who may not understand we do NOT want Makhi's immune system to become active...So hopeful this helps him. I just PRAY that he is not headed for a relapse... He has come so far in a year. July 18 will be one year since he was DX with Neuroblastoma and OMS. What a journey this has been for Makhi and my entire family.. Please keep Makhi is your prayers
2 comments:
Tara and family, our prayers are with you all, you are a strong mother, and your son is a fighter, we have all been witness to his pain and tremendous healing, tough times will get better in time. Love and Hugs for you all.Irina and Family
I pray that the IVIG continues to do the trick for him and that this is not the begining of a relapse. I havn't known you for very long but I can see that both you and your son are very strong and you'll get through this! Take care and be sure to keep us updated!!
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