What A Weekend

What a weekend it was we have been so busy!!! I want to first update everyone on Makhi's scale down of ACTH. We have made our first scale down of ACTH. After hangin steady at .20 for 7 months we are now down to .18 and he seems to be doing well. Our next scale down will not be until March 1st and then we will be going down to .16. So we are just crossing our fingers and praying allot!!!


Makhi had a wonderful weekend his THON family.They came the hole way down from PENN STATE to spend the day with him and his sister at his favorite place on earth CHUCKIE CHEESE. They were wonderful!!! They really SPOILED the kids. They brought gift for the kids and even for my husband and I. We are so excited to spend our first year at THON next weekend. We leave for PENN STATE next Friday.

Also Cierra got to spend the evening alone with her daddy for a father and daughter's Valentine's Day Dance. They had a wonderful time they got to dance the night away and they even got there picture taken I can't wait to get them back. She had so much fun she is already talking about going back again next year. She is really growing up and turning into such a little lady!!!




I found this to be very uplifting!!!










Ode to Special Moms
Most women become mothers by accident, some by choice, a few by
social pressures and a couple by habit.

This year, nearly 100,000 women will become mothers of handicapped
children.
Did you ever wonder how mothers of handicapped children are chosen?

Somehow I visualize God hovering over Earth selecting his instruments
for
propagation with great care and deliberation. As he observes, he
instructs
his angels to make notes in a giant ledger.

"Armstrong, Beth, son, patron saint, Matthew. Forrest, Marjorie,
daughter,
patron saint, Cecilia.

"Rudledge, Carrie, twins, patron saint, give her Gerard. He's used to
profanity."

Finally, he passes a name to an angel and smiles, "Give her a
handicapped
child."

The angel is curious. "Why this one, God? She's so happy."

"Exactly," says God. "Could I give a handicapped child to a mother
who does
not know laughter? That would be cruel."

"But has she patience?" asks the angel.

"I don't want her to have too much patience or she will drown in a
sea of
self-pity and despair. Once the shock and resentment wear off, she'll
handle it.

"I watched her today. She has that feeling of self and independence
that is
so rare and so necessary in a mother. You see, the child I'm going to
give
her has his own world. She has to make it live in her world, and
that's not
going to be easy."

"But, Lord, I don't think she even believes in you."

God smiles. "No matter. I can fix that. This one is perfect. She has
just
enough selfishness. "

The angel gasps, "Selfishness? Is that a virtue?"

God nods. "If she can't separate herself from the child occasionally,
she'll never survive. Yes, here is a woman whom I will bless with a
child
less than perfect. She doesn't realize it yet, but she is to be
envied.
She will never take for granted a 'spoken word.' She will never
consider a
'step' ordinary. When her child says 'Momma' for the first time, she
will
be present at a miracle and know it! When she describes a tree or a
sunset
to her blind child, she will see it as few people ever see my
creations.

"I will permit her to see clearly the things I see . . . ignorance,
cruelty, prejudice . . . and allow her to rise above them. She will
never
be alone. I will be at her side every minute of every day of her
life,
because she is doing my work as surely as she is here by my side."

"And what about her patron saint?" asks the angel, pen poised midair.

God smiles. "A mirror will suffice."

- Erma Bombeck, May, 1980

That is all for now. Good Night and God Bless
Tara