Makhi spent another long day at the hospital. He has had a cold for the last four days and his cough has become bad so his oncologist and I decided to go ahead with IVIG a few days early to help him fight this cold that he has. She also prescribed him a inhaler to help open up his airways so that he can sleep at night. He has spent the last 4 nights up unable to breath because he can't stop coughing. Dr Comito also order a chest X-Ray be done right after we were done with IVIG today just to be on the safe side. On the bright side of all this we have not seen one tremor in his body. I am thanking GOD for that everyday. In the past before Cytoxan (chemo) if he even got a runny nose he would start with tremors. So I am very pleased with the fact that he has been able to combat 3 colds in the month without any signs of tremors or eye movement that is something worth celebrating!!! AMEN!!!
We are getting ready to make our 5 trip to Springfield IL to see Dr.Pranzettli March 10,2009 and as long as Makhi stay on the same track he is on now he will not have to have a spinal tap done he will just be seen for a clinic visit. Also I spoke with Dr P yesterday and we are going to start attempting to wean Makhi off the steroids again. He is at .20 now and we will decrease .02 per months so that means Makhi will be on them another 9 months but he wants to do a VERY SLOW WEAN!!!
Well that is all for now. Please Keep praying for Makhi(& ALL OMS KIDS)
that he keeps making positive steps to remission!!!
Love Tara
1 comment:
Tara,
I am so happy that things are looking up for Makhi! It sucks that he keeps gettin these cold, but FABULOUS that you have seen NO signs of the tremors! My thoughts and prayers are with all of you, always!
Lisa
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