On Wednesday Makhi had another full day of testing. He had a Bone Density test,Echocardiogram and a EKG done.... All these test have to be done because of the serious side effects that come along with using ACTH (intramuscular steroid)
All these test were painless but you have to lay still and boy was that a challenge!!!!
The good news is both the Bone Density and the Echocardiogram came back norm and we are still waiting on the results from the the EKG.
Were still waiting to see when we will be starting Cytoxan (chemo drug). I am still praying this will be the drug that helps us get Makhi's OMS into remission. After the Cytoxan is given over the coarse of 3 months then we will be able to try to scale down on the ACTH.
Makhi is still doing very well at school and his speech is becoming soooo much clearer !!!
Thank you for all you prayer!!!!
2 comments:
Hi Tara! Sorry I have been MIA, toms of computer problems...What a big boy Makhi looks like laying there so still. I bet you were so proud of him. I hope the Cytoxan does the trick and helps him out like it did Connor. Please know that he is in our prayers, and that you are too. You are a wonderful mother and such a fighter for your son!
Love,
Debbie and Connor
www.iwillliftmyeyesconnorkhoury.blogspot.com
Aww! He looks like he done great with the laying still part..atleast for pictues anyways..lol:) I bet it was a job to keep him entertained so he wasn't wanting up to move around! I hope things work out for him with the Cytoxan. I also seen the pictures from the day out with Thomas! How cute! We'll be experiencing that at the end of October:) Take care and keep in touch.
-Jodi Vollbracht
www.caringbridge.org/visit/travonstclair
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