Things are still the same. Makhi is still showing OMS breakthough symptoms. (tremors in legs and hands) so we are going back to the Hershey Med Center tomorrow for another IVIG treatment. We were suppose to have it done Monday but the DR's want Makhi to have it done early again. So I am praying that this helps. I guess I should just be thankful it is not a full blown relapses of OMS.
Well now for some good news... Makhi has now become a MAKE A WISH KID!!!!!! He has wished to go to Disney World and his wish has been granted!!!!!! We will spend a week in Disney World for Makhi's 4 Birthday.... We leave Nov, 18 and his birthday is Nov 20 so how cool is that. All 3 of my kids are just sooo excited about going...(shhhh.. so is mommy and daddy LOL). I am sure this will be a vaction like no other.
We are also leaving for the beach in a week Aug 17 to Aug 24 (I CAN"T WAIT) . The kids start school the following day after we return home Aug 25(this is nataly b-day she will be 9). Then a week later on September 8 me and Makhi will be flying to Springfield to see Dr Prazatelli. So there really is alot coming up..... I really pray we get some answers as to why Makhi's is having OMS breakthough symptoms. I am so nervous about flying there with Makhi alone .. Just pray for me and him that we don't get lost on our way to Springfield LOL .... We have about a hour and a half drive after we land in Perio IL. My husband can not go this time because he has to take another week off in November for Disney... :(
Please keep Makhi in your prayers ...He has come so far in a year..
2 comments:
Wow, sounds like you guys have a busy schedule in the next few months! That is great that he got his wish granted and gets to go to Disney World!! How exciting! Are you guys doing the miracle flight thing this time to see Dr.P or just taking a regular flight? I had read about the special ones on his website or something...Anyways, you all enjoy your trip to the beach and we'll be thinking about Makhi and praying that he gets better soon!
-Jodi Vollbracht
Yeah! I am so thrilled for all of you-what a joy it will be to be able to put thoughts of treatments out of your heads for a bit while in Disney. Hope Dr.P can find out why Makhi is having these symptoms after doing so well. Our prayers will be with you on your "solo" trip-you will do great Tara! Love the pic of Makhi in the tub, so cute.
Debbie & Connor
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