I AM WINNING THE BATTLE AGAINST OMS

I AM WINNING THE BATTLE AGAINST OMS
“You gain strength, courage, and confidence by every experience by which you really stop to look fear in the face

Tuesday, August 12, 2008

A FUN DAY AT CHUCKIE CHEESE


Yesterday Makhi had doctors appiontment w/ his oncologist. She could not believe how BIG he got. She had not seen him in 2 months because we've had to go early for IVIG and she was in clinic those days. She was able to see the tremors in Makhi's legs and is unsure as to why this would be happening and is just waiting to get the results back from our upcoming visit with Dr Pranzetti Sep 8 .

We also took the time to look back over the last year on just how far he has come. A year ago he could not talk, walk, or even stand up. A year later after he started treatment for the OMS he is able to walking talk in complete sentence, run , skip, jump.He is now up to speed with most of his peers.

Dr.Commito had seen a child with OMS back in the 80's who did not have the same outcome as Makhi has.... it just makes me relize how much modern medicine and reserch really mean.

We actually got our itinerary today and we will be flying out of HIA @ 12:30pm on 9/7 & flying into Detriot MI & then into Peoria IL. We should get there around 4:30pm. I called the car rental company today and told them I NEED a car with GPS. I just pray we don't get lost. Were 76 mile out of Springfield from Peoria IL.

Makhi had a great day with his cousin's @ Chuckie Cheese. He loves to go there it is his favriote place.His fazorite thing is to ride the horse they have there.

ONLY 6 more day until we leave for the beach. HARRRAY!!!!!!!!!!!!!!!!!!!!!!!

No comments: